Posts

Showing posts from January, 2016

Our Story of a Syndrome:The Birth-- Part One

Image
Last night I laid in bed unable to sleep--so many thoughts on my mind. Not one thought, not one particular anxiety, just thoughts.  Frustrated I decided to see if Netflix is Android enabled on my new itty, bitty Galaxy 3.6 Note. If Netflix was possible I would bring up my account and find something to watch in bed.  Really, the idea seemed incredulous.  In my 70s childhood I never even dreamed that someday I might be able to lay in bed and hold a three inch "TV" in my hand, minus any cords or antennae, and watch a movie!   But I did.  I watched a movie that I had recently added to my instant queue--knowing it would be my "kind of movie." The clean, girly, sappy kind of movie. BBC makes the best! Within the first couple of minutes I was in tears.  Not just tears, but rolling, strolling down the cheeks kind of tears.  This movie hit me on all kinds of levels, and eked open a lid allowing months and months, not to mention years, of mom emotions to come floodi

It's Me Who Needs to Learn

Image
I recently read a shared post called, " How to Survive being friends with a Special Needs Parent " by Fiona Russo.  And though I agree with one of the feedback responses who said using the word, "survive" seemed a bit patronizing, once you get past the title the rest of the article rings quite true--at least for most of us! Friendships are so hard: I have written about this in a previous blog. But this is still a topic of which I cannot really wrap my mind around for more reasons than, "being a special needs parent."  Being social, apparently, comes easy for some personalities and not so easy for others. And you know of whom i'm talking about: introverts.  The "strong" (or so I have read), silent type who have a myriad of words floating around in their brains, but rarely get let out of the gate for self expression. And yes, I am a self-confessed introvert. If I could have chosen my personality I would not have chosen introvert!  But, qu