Medically Complex and the Stories of Our Lives

Photo Credit RacingAwareness.com We don't know what to say, or how to say it.  I hope our faces-at least in part--spoke of our  gratitude  for your organization RacingAwareness.com , and for your kindness towards total strangers. The past four years have been the hardest years of our lives.  Fraught with constant illnesses, accumulating diagnoses, cancer scares, debilitating malnutrition, and health care split between two different health systems our lives have been forever changed. We have learned to live differently, love differently, and hold on a little tighter to each moment. In the first three and a half years there were no outings, no mom and dad dates, no trips to the beach, just living in the moment--from crisis to crisis and hospitalization to hospitalization.  The past 12 months have not been easy either, with winter virus's constantly beating his little body down, and fighting a never ending battle against weight loss, malnutrition and dehydration, despite