Medically Complex and the Stories of Our Lives

Not Just Another ER Visit My routine trips to the ER are not without stress. Rhyse is once again sick, uncomfortable, scared of the personnel, and for whatever reason we are usually arriving in the middle of the night when all sense of normalcy or social appropriateness is severely lacking!  If that isn’t enough with every visit I have to donne my educator hat, always answering that proverbial question, “so what does Noonans mean medically?” or “what are his diagnoses?” or my favorite, “how do you spell that?” Are you kidding me? All that information is in his digital chart! Why on earth do I have to spell something that’s right in front of them? Okay, so I am being cynical.  But truth be told, Noonans seems more like a rare, tropical disease by the way many medical professionals ask their questions! I’ll get off my soap box now… Rhyse is 20 months old. He knows where he is the second we enter the parking garage with its green and orange painted walls, signifying wh