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Showing posts from February 15, 2016

Our Story of a Syndrome:Mystery Man-- Part Four

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With postpartum hormones flailing about wildly I couldn't contain my emotions.  I was a weepy mess.   I planted myself in Rhyse's room. I told the nurses I wasn't leaving.  I would spend the first night with Rhyse--no matter what.  How could I not?  Although time with baby is highly encouraged in the NICU, sleepovers not so much.  I could tell the nurses were not happy with my decision: "moms need their sleep, too" they said.  And I said, "I just had my son yesterday, I cannot abandon him. "    Strangers.  That is how I saw the multitudes of nurses that came and went and poked and prodded and crammed ng tubes into his nose and IV's into his small, frail body. The first couple of days are marked on my mind forever.  My little 5 pound, 4 ounce baby was instantly coined, "Mystery Man" by the specialists and other doctors.  At first the doctors administered a couple bolus's of IVIGs, thinking his blood type was simply coll