Medically Complex and the Stories of Our Lives

Photo Credit RacingAwareness.com We don't know what to say, or how to say it.  I hope our faces-at least in part--spoke of our  gratitude  for your organization RacingAwareness.com , and for your kindness towards total strangers. The past four years have been the hardest years of our lives.  Fraught with constant illnesses, accumulating diagnoses, cancer scares, debilitating malnutrition, and health care split between two different health systems our lives have been forever changed. We have learned to live differently, love differently, and hold on a little tighter to each moment. In the first three and a half years there were no outings, no mom and dad dates, no trips to the beach, just living in the moment--from crisis to crisis and hospitalization to hospitalization.  The past 12 months have not been easy either, with winter virus's constantly beating his little body down, and fighting a never ending battle against weight loss, ma...

My biggest fear in the NICU was that Rhyse would not be able to properly bond with me as his mom.  Many of the spilled tears were because of this anxiety that wouldn't go away.  I had heard and read of so many children who were permanently defunct in some ways because of the loss of bonding time with a mother.  I am also an adoptive mother: I know first-hand what happens to a child who has never been able to bond to their biological, God-given parent and have to transfer that powerful need to another. Though I will always advocate for adoption, there are intrinsic issues with bonding that plague both adoptees and adoptive parents for life.  And I didn't want my son to deal with those pains because of NICU time.  Maybe this was irrational, but it was an emormous burden at the time.  And one more anxiety that threatened to overtake me. If it were not for the Lord and the constant reminding through his Word that he must cast our cares on Him and receive ...