Medically Complex and the Stories of Our Lives

I have never wanted to be a superhero. Superman wears a cape and red underwear to perform his civic duties. Batman wears a mask and special gloves to save the world. Wonder Woman wears a silk bikini and magic bracelets to ward off the bad guys.  Spiderman wears pajamas for his strength, and on and on and on it goes.  Superheroes. Beings that always win the battle, no matter what.  I've never been a fan of superheroes, and now in my forties, even less. Why don't I like superheroes? I do not like superheroes because there are no battle wounds, no life long scars, no emotional responses.  No brokenness.  I cannot relate to such a superficial, one dimensional reality. I would love to wake up one day and be "over it.'  To put the years of pain, fear, and trauma as it relates to my little son with Noonan Syndrome completely to rest--to find that reset button, or magic wand.  Instead the twists and turns of my journey keep dragging my toes into deep, deep sand that I

I recently read a shared post called, " How to Survive being friends with a Special Needs Parent " by Fiona Russo.  And though I agree with one of the feedback responses who said using the word, "survive" seemed a bit patronizing, once you get past the title the rest of the article rings quite true--at least for most of us! Friendships are so hard: I have written about this in a previous blog. But this is still a topic of which I cannot really wrap my mind around for more reasons than, "being a special needs parent."  Being social, apparently, comes easy for some personalities and not so easy for others. And you know of whom i'm talking about: introverts.  The "strong" (or so I have read), silent type who have a myriad of words floating around in their brains, but rarely get let out of the gate for self expression. And yes, I am a self-confessed introvert. If I could have chosen my personality I would not have chosen introvert!  But, qu